Decades of enduring countless medical crises with her son has given Susan a unique perspective on the sacred gifts life can offer amidst long-term suffering. She shares Ben’s story in the hope of encouraging others on hard journeys, to embrace gratitude and curiosity and to find courage and resilience through the sweet surrender of an open heart.
About Susan
Despite A Good Heart being Susan Johnson’s debut book, her writings—particularly about Ben’s life—have been shared with family and friends over the last three decades. With the encouragement of those who have been inspired by her family’s journey, and by embracing her own healing vulnerability in the writing, Susan is excited to finally share this story and her unique perspective on the lessons and legacy Ben left behind.
A Good Heart is the inspiring, yet gut-wrenching story of raising a child with an extreme medical condition. Susan's honesty and vulnerability will give hope to others and inspire all who read this beautiful story. Have a box of tissues handy and be prepared to stay up late because you won't be able to put the book down. I highly recommend this incredible book.
of A Good Heart
Such a stunning story of grief, love, strength and motherhood. A superbly well-crafted memoir weaving past and present together. Susan guides you through her story artfully and deftly, bringing you into her heart and soul as she becomes the mother and woman she never imagined she'd have to be, but did so with wholehearted grace. There's rawness, humor, brokenness, and healing. Truly a story worth knowing.
