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What do we really want in the face of grief and anticipated loss? We want it to end, and not to end. Relief from the pain, but a holding on to the hope for a miracle.

 


 
 

OUT NOW:

A Good Heart:
How my half-hearted son gifted me a whole-hearted life, one miracle at a time

Decades of enduring countless medical crises with her son has given Susan a unique perspective on the sacred gifts life can offer amidst long-term suffering. She shares Ben’s story in the hope of encouraging others on hard journeys, to embrace gratitude and curiosity and to find courage and resilience through the sweet surrender of an open heart.

 
 
 
 

About Susan

Despite A Good Heart being Susan Johnson’s debut book, her writings—particularly about Ben’s life—have been shared with family and friends over the last three decades. With the encouragement of those who have been inspired by her family’s journey, and by embracing her own healing vulnerability in the writing, Susan is excited to finally share this story and her unique perspective on the lessons and legacy Ben left behind.

 
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